All the advice in the other comments is great. Advocate for yourself and don’t give up. Find people who can support you.

As someone that has struggled with mysterious issues as well, I just wanted to say that you’re not exaggerating or over reacting and you’re not alone. You’re doing your best to find help but the system is not working the way it should. Your family is supposed to support you. Your doctors are supposed to work to find a good diagnosis and relieve your symptoms. If they aren’t doing that you will need to do even more work yourself, which sucks. Push them when you can, and if they still aren’t responsive find a different doctor. I know it’s hard, and exhausting, and expensive. But you have your whole life ahead of you, it’s 100% worth it to get this figured out now.

KWGT Kustom Widget Maker, Nova launcher, Sunrise icon pack

Had it like this for years and I love it, but this thread is giving me ideas. Maybe it’s time to change it up